Newborn Screening for Metabolic and Sickle Cell Disorders Program
Cystic Fibrosis
Fact sheet: provides general information about the disorder.**
Parent fact sheet provides general information about the disorder.**
ACT Sheet: immediate steps for physicians to take upon receiving a positive screen for an infant in his or her practice.**
Newborn Screening Follow-Up:
Emory University School of Medicine, Department of Human Genetics
Newborn Screening Follow-up Program: (404) 778-8560
Metabolic Nutritionist: (404) 785-6000
Geneticist-on-Call (pager for nights and weekends): (404) 785-6000
Clinical Intervention and Specialty Referral in Georgia:
Positive Cystic Fibrosis Newborn Screen
Information for Parents: When Your Baby has a Positive CF Newborn Screening Result
Information for Providers: When Your Patient has a Positive CF Newborn Screening Result
Cystic Fibrosis Carrier Information
Information for Parents: When Your Baby is a Cystic Fibrosis Carrier
Genetic Counseling for Cystic Fibrosis Carriers
Other Resources:
Cystic Fibrosis Foundation: Georgia Chapter
Save Babies Through Screening Foundation, Inc.
**This information is provided for the families and physicians of children newly identified with, or at an increased risk for, a metabolic condition as determined by the Georgia Newborn Screening Program. The links provided are to information from recognized and trusted sources. It is however, important to note that this content is NOT a substitute for professional medical advice, diagnosis or treatment.
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